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  • diagnosed – planetcirculate https://planetcirculate.com Tue, 19 Mar 2024 13:34:41 +0000 en-US hourly 1 https://wordpress.org/?v=6.4.3 Creighton’s Isaac Traudt wears glucose monitor to stay in game. His diabetes was diagnosed at age 4 https://planetcirculate.com/creightons-isaac-traudt-wears-glucose-monitor-to-stay-in-game-his-diabetes-was-diagnosed-at-age-4/ https://planetcirculate.com/creightons-isaac-traudt-wears-glucose-monitor-to-stay-in-game-his-diabetes-was-diagnosed-at-age-4/#respond Tue, 19 Mar 2024 13:34:41 +0000 https://planetcirculate.com/creightons-isaac-traudt-wears-glucose-monitor-to-stay-in-game-his-diabetes-was-diagnosed-at-age-4/

    OMAHA, Neb. (AP) — When Creighton basketball player Isaac Traudt’s teammates take a break at practice, they might grab a drink of water, chat it up or go over assignments. Traudt does that, too, but not before he checks a device attached to his body that tells him his blood glucose level. Depending on what […]

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    ]]>


    OMAHA, Neb. (AP) — When Creighton basketball player Isaac Traudt’s teammates take a break at practice, they might grab a drink of water, chat it up or go over assignments.

    Traudt does that, too, but not before he checks a device attached to his body that tells him his blood glucose level. Depending on what it says, he might need to grab some energy chews for a sugar bump. The routine is the same at halftime of games.

    “I don’t think I’ve ever seen anybody put down a packet of chews faster than Isaac,” athletic trainer Ben McNair said. “He can probably put a pack of those down in 10 to 15 seconds.”

    Traudt was diagnosed with Type 1 diabetes 16 years ago, at age 4, and he’s never let it stop him from pursuing the sport he loves. He will be with the Bluejays on Thursday when they open the NCAA Tournament against Akron in Pittsburgh.

    The 6-foot-10, 235-pound forward grew up in Grand Island, 130 miles west of Omaha, and was a two-time all-state player and Nebraska high school player of the year in 2022. He spent his first college season at Virginia, sitting out as a redshirt, and announced his transfer to Creighton last March.

    Traudt has appeared in 28 of the Bluejays’ 32 games, averaging just under 10 minutes per game and shooting 43.6% on 3-pointers. He started two games early in the season, and made five 3s and scored a season-high 18 points off the bench against Central Michigan.

    Former NBA players Chris Dudley, Adam Morrison and Gary Forbes and former WNBA player Lauren Cox are among the high-level basketball players who have had to manage diabetes.

    Traudt said he has had a number of parents of recently diagnosed children ask him to give their kids encouragement.

    “It’s just important for them to know their dreams can still be accomplished,” Traudt said. “They can still compete in their sports. I think that’s what a lot of them worry about. I just want to inspire them and show you can play at the highest level.

    “It doesn’t really matter if you have diabetes or not. It just takes more responsibility. It’s more demanding, but at the end of the day it’s possible.”

    Dr. Lori Laffel, an endocrinologist and clinical investigator who works with children and young adults at the Harvard Medical School’s Joslin Diabetes Center, said technological advances have made it easier for athletes to manage their diabetes.

    In the 1950s, she said, people diagnosed with Type 1 diabetes were discouraged from engaging in strenuous physical activity because of the dangers of low blood glucose. Later research showed positive effects from exercise, but athletes had to go through the inconvenience of pricking their fingers in practices and games to check their glucose.

    In recent years, athletes have used continuous glucose monitors that communicate with insulin pumps to maintain glucose levels in their target ranges. The CGM sends readings to an app on the athlete’s phone showing glucose levels at five-minute intervals and also whether it is trending higher or lower.

    Traudt said he had daily insulin injections until he switched at age 7 to an insulin pump. The modern insulin pump that he now uses can automatically adjust insulin, for example, delivering more insulin if his glucose goes too high and reducing insulin delivery when it goes too low. The pump and Dexcom CGM, which he has used since he was 13, are attached to his body under his uniform.

    “Obviously, in my short lifetime it’s come a really long way,” he said. “Compared to 40 years ago, I couldn’t even imagine going through this without the technology. It would be really difficult.”

    He doesn’t really need the CGM to know when his body is out of whack. When his blood sugar is low, he gets dizzy and fatigued. When it’s high, he gets thirsty and has body aches.

    McNair said Traudt does a good job anticipating when he needs to up his blood glucose during practices and games.

    “As soon as he feels like he’s going downhill a little bit, we do the chews for the most part and not too long after that he’s pretty much back on the floor,” McNair said.

    Laffel, who has not treated Traudt and does not know him, said she can tell from hearing his story he has had strong support from his family and the medical and coaching staffs at Creighton.

    “It’s always a thrill,” Laffel said, “when I know people are playing to their potential, working to their potential and thriving while living with Type 1 diabetes.”

    ___

    AP March Madness bracket: https://apnews.com/hub/ncaa-mens-bracket and coverage: https://apnews.com/hub/march-madness



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    I’m the first person in the WORLD to ever be diagnosed with my cancer https://planetcirculate.com/im-the-first-person-in-the-world-to-ever-be-diagnosed-with-my-cancer/ https://planetcirculate.com/im-the-first-person-in-the-world-to-ever-be-diagnosed-with-my-cancer/#respond Mon, 18 Mar 2024 14:56:09 +0000 https://planetcirculate.com/im-the-first-person-in-the-world-to-ever-be-diagnosed-with-my-cancer/

    A mother has told how doctors believe she is the only person in the world to have ever been diagnosed with her cancer.  Alison Varley, of Ossett in West Yorkshire, said she is ‘terrified’ and that medics are ‘struggling’ with her never-before-seen illness. The 42-year-old starts chemo today but fears she may not make Christmas, bluntly […]

    The post I’m the first person in the WORLD to ever be diagnosed with my cancer appeared first on planetcirculate.

    ]]>


    A mother has told how doctors believe she is the only person in the world to have ever been diagnosed with her cancer. 

    Alison Varley, of Ossett in West Yorkshire, said she is ‘terrified’ and that medics are ‘struggling’ with her never-before-seen illness.

    The 42-year-old starts chemo today but fears she may not make Christmas, bluntly admitting: ‘I don’t know if it’s going to work.’

    Mrs Varley was diagnosed with a specific type of goblet cell carcinoma in 2021 after seeking help for what she assumed was a chest infection that left her struggling to breathe.

    Antibiotics failed to help, prompting her husband Matthew to eventually call her an ambulance.

    Alison Varley, of Ossett in West Yorkshire, said she is ‘terrified’ and that medics are ‘struggling’ with her never-before-seen illness. The 42-year-old starts chemo today but fears she may not make Christmas, bluntly admitting: ‘I don’t know if it’s going to work.’ Mrs Varley, pictured with her husband Matthew and daughters Delilah and Daisy

    Mrs Varley was diagnosed with a specific type of goblet cell carcinoma in 2021 after seeking help for what she assumed was a chest infection that left her struggling to breathe. Antibiotics failed to help, prompting her husband Matthew to eventually call her an ambulance. Pictured, Mrs Varley with her son Charlie

    Mrs Varley was diagnosed with a specific type of goblet cell carcinoma in 2021 after seeking help for what she assumed was a chest infection that left her struggling to breathe. Antibiotics failed to help, prompting her husband Matthew to eventually call her an ambulance. Pictured, Mrs Varley with her son Charlie 

    Hospital scans later revealed she had fluid on her lung — and a mass on her ovary. 

    Goblet cell carcinomas develop in the appendix and are thought to strike just one in every million people. They are more common in people in their 50s and 60s.

    Mrs Varley said she was told the genetic make-up of her cancer is ‘like no other in the world’. 

    Since her diagnosis in late 2021 — just six months after her third child, Delilah, was born — the cancer has spread to her rectum and abdomen. 

    Recalling the news, Mrs Varley said: ‘I thought I had a chest infection and could not breathe very well. 

    WHAT IS GOBLET CELL CARCINOMA?

    Goblet cells line the internal organs and make mucus.

    The name refers to the fact they are shaped like miniature wine goblets when examined under a microscope.

    Goblet cell carcinomas start in the appendix and are a type of neuroendocrine tumour (NET). They typically affect people over the age of 50.

    The first symptom is appendicitis, or sometimes prolonged pain and an unusual lump in the lower right side of the abdomen.

    Studies have shown the overall 5-year survival rate stands around is 100 per cent, 76 per cent, 22 per cent, and 14 per cent respectively for stages I, II, III, and IV goblet cell carcinomas. 

    An important predictor of survival is the initial size of the tumour and whether or not cells have spread from its original location to other parts of the body.

    Sources: International Journal of Surgery Case ReportsCurrent Problems in Cancer: Case Reports, BMC, The Christie NHS Foundation Trust

    ‘I went to the doctors and was given a week’s course of antibiotics. They didn’t touch it. 

    ‘I went back and had three more days and my husband said to call 111 and they sent an ambulance.

    ‘They did a CT scan and found five litres of fluid in my right lung. They tried to drain the fluid and did a CT scan and found a large mass on my ovary.’

    She added: ‘It’s rare upon rare upon rare. There is no one with my cancer. The genetic make-up of it is like no other in the world. 

    ‘There are people with goblet cell, but not the genetic make-up.

    ‘That’s why they’re [doctors are] struggling with me because there is no one in front of me [with it.]’

    Goblet cell carcinoma often exclusively affects the appendix and is usually only discovered during tests or treatments for other conditions, such as an appendicectomy or small bowel resection. 

    It can be treated in some cases via surgery, to remove the appendix and surrounding tissue.

    In others, however, as the body fights the disease, a mass of fluid can form. 

    According to Neuroendocrine Cancer UK, chemo and immunotherapy is offered when there is a higher risk of the cancer returning.

    Mrs Varley, who is under the care of St James’s University Hospital in Leeds, The Christie in Manchester and Basingstoke and North Hampshire Hospital, underwent surgery to remove her appendix followed by a full hysterectomy.

    Immunotherapy initially successfully reduced the size of the tumours in her abdomen and rectum. 

    But, she claimed, it triggered an adverse reaction causing a growth in the cancer. 

    She added: ‘They stopped that immediately. If a cancer grows while under treatment it can aggravate it further. I was more or less put on a “watch and wait”

      .’

      Over the course of nine months with no treatment, her cancer grew ‘slightly’.

      Since then, however, Mrs Varley has also suffered pain in her bowel. A colonoscopy last week discovered the tumour had grown further. 

      ‘An oncologist came to see me and he said the cancer has grown and he thinks it is in the bowel,’ she said. 

      Mrs Varley, who is under the care of St James's University Hospital in Leeds, The Christie in Manchester and Basingstoke and North Hampshire Hospital, underwent surgery to remove her appendix followed by a full hysterectomy. Immunotherapy initially successfully reduced the size of the tumours in her abdomen and rectum. But, she claimed, it triggered an adverse reaction causing a growth in the cancer. Pictured Mrs Varley with her daughters Daisy and Delilah

      Mrs Varley, who is under the care of St James’s University Hospital in Leeds, The Christie in Manchester and Basingstoke and North Hampshire Hospital, underwent surgery to remove her appendix followed by a full hysterectomy. Immunotherapy initially successfully reduced the size of the tumours in her abdomen and rectum. But, she claimed, it triggered an adverse reaction causing a growth in the cancer. Pictured Mrs Varley with her daughters Daisy and Delilah

      ‘It has grown quite a bit which is shocking. I only had a colonoscopy in November and he said it was clear and fast forward to March.’ 

      Mrs Varley, who also shares her son Charlie, 20, and Daisy, four, with Matthew, began chemotherapy today, which she believes will last around three months, to help prevent further tumour growth.

      ‘I’m absolutely terrified. I’m scared for my kids,’ she added. 

      ‘It’s worrying because I’m going to be trying chemotherapy. I don’t know if it’s going to work.’ 

      In a bid to support day-to-day costs as Mr Varley takes unpaid leave to care for Daisy and Delilah, her friends have launched a JustGiving page, raising more than £3,000 in just two days. 

      Mrs Varley said: ‘It’s hard not to talk about dark things when you’re in my shoes.

      ‘I don’t know if this is going to be my last Christmas or birthday with them. I don’t know what is going to happen. They said it [the cancer] was stable but all of a sudden it’s growing. I don’t understand.’

      The donations ‘really do mean the world’, she added.   

      ‘When I’m poorly and curled up in my bed because I can’t move, my kids will have food in the cupboards and I can put the heating on when it’s cold.’



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      Woman reveals she was diagnosed with genital herpes https://planetcirculate.com/woman-reveals-she-was-diagnosed-with-genital-herpes/ https://planetcirculate.com/woman-reveals-she-was-diagnosed-with-genital-herpes/#respond Sat, 16 Mar 2024 06:31:47 +0000 https://planetcirculate.com/woman-reveals-she-was-diagnosed-with-genital-herpes/

      A woman has revealed how she started having suicidal thoughts following a short phone call with a doctor. Annaleise Easlea thought she had cut herself shaving and it wasn’t healing around the time she was meant to have a regular check-up. “The doctor agreed they thought it was a cut from shaving but she swabbed […]

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      ]]>


      A woman has revealed how she started having suicidal thoughts following a short phone call with a doctor.

      Annaleise Easlea thought she had cut herself shaving and it wasn’t healing around the time she was meant to have a regular check-up.

      “The doctor agreed they thought it was a cut from shaving but she swabbed it for herpes,” Ms Easlea told news.com.au.

      A week later, Ms Easlea was told she needed to schedule a follow up appointment. She was nervous as, usually with these tests, no news is good news.

      She booked a telehealth appointment as she couldn’t fathom being told what she suspected face-to-face.

      “I had the call the next day and he told me I was positive for HSV-2 and pretty much ended the conversation, besides talking to me about antivirals,” Ms Easlea said.

      “I hung up the phone and I just broke. It felt like in an instant I was forced to grieve the life I had without a lifelong diagnosis and forced to accept that a lot of people don’t have an understanding about it.”

      HSV-1 is spread through oral contact causing infections in or around the mouth. It can also cause genital herpes. HSV-2 is spread by sexual contact and causes genital herpes.

      Most people have no symptoms.

      The World Health Organisation said 3.7 billion people under 50 have HSV-1 and 491 people between 15 and 49 have HSV-2, as of April 2023.

      Ms Easlea felt shocked and a deep sadness over her diagnosis, particularly because of the misinformation about herpes and the fact no one talks about it.

      When she discovered her diagnosis in May 2023, it was a week before she launched her book Keep Swimming. It was already a difficult time so she pushed down and got on with what she needed to do.

      “After all the excitement around that started to wear off, that’s when the diagnosis really came front of mind again. It got worse before it got better,” she said.

      “I really started to struggle with suicidal ideation again.”

      Her book was on mental health and she had been through some rough periods in her life – she’d been part of and left the navy after six years, she’d also left her marriage to focus on her mental health. But something about this particular news had a tight grip on her. Although she wasn’t angry at the person who’d passed herpes onto her.

      “I can say maybe they didn’t disclose to me but it’s highly likely these people might not have ever known they had it, or their symptoms were so mild they thought it was something else,” she said,

      “It’s not really anyone’s fault unless someone is intentionally doing that.”

      Instead, she mourned the life she had imagined for herself, fearing that her diagnosis would lead to a future filled with confusion and judgment from others. Just a day before her 30th birthday trip to Thailand, Ms Easlea found herself suddenly uncertain if she could even board the plane. It felt as if there was no future ahead for her.

      So, she did what she always did when she needed to clear her head – she went for a drive. Driving for three hours, she debated whether she should board the plane. During her drive, an email arrived from a woman who had attended her book launch. The woman expressed gratitude for her candid speech about mental health, mentioning that it had helped her better support her son through his depression.

      “That email reminded me of the power I have using my voice to turn my pain into my purpose and help others through it,” she said.

      “I had this light bulb moment where I realised if my voice was still having an impact a month after her book launch, then maybe that’s why I had herpes because I can’t sit still knowing how much it impacts people’s mental health.

      “There are so many people suffering in silence because they feel they can’t talk to anyone.”

      She decided to board the plane to Thailand. While on the flight, she wrote about her diagnosis and shared it with a friend. This friend then passed it on to someone else diagnosed with herpes, who found it very helpful.

      Now, she is using her voice to raise awareness and debunk misconceptions about herpes. She emphasises that while physical symptoms may be concerning, the mental impact is often the most challenging. Ms. Easlea notes that doctors typically offer minimal information about support services or general STI education. She advocates for those diagnosed with the condition to also receive referrals to psychologists or sexologists to help navigate the initial shock and trauma.

      “It’s not something that defines them, and they can learn to live and thrive with HSV. It is possible because I’m doing it,” she said.

      Ms Easlea, who is taking a break from dating to find herself, said there were benefits to having herpes, such as it acting as a dating filter when having conversations about it.

      She said it also helped keeping track of your mental and physical wellbeing, as it often flared up during periods of stress. Ms Easlea encouraged people to undergo regular STI testing while also reminding them that a positive diagnosis doesn’t signal the end of the world.

      Dr Mitchell Tanner, the co-founder of Stigma Health, said early detection was important to help lessen potential, longer-term risks.

      “More than a third of Stigma Health’s patients using the asynchronous telehealth option are first-time STI testers which proves the value of discreet access – these are thousands of people who may not have sought out testing otherwise,” he said.

      “Access to STI testing and sexual health services in a non-judgemental and online environment is critical to the uplift of testing rates in Australia.”





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      First New Zealand professional rugby player diagnosed with CTE – report https://planetcirculate.com/first-new-zealand-professional-rugby-player-diagnosed-with-cte-report/ https://planetcirculate.com/first-new-zealand-professional-rugby-player-diagnosed-with-cte-report/#respond Thu, 14 Mar 2024 08:06:05 +0000 https://planetcirculate.com/first-new-zealand-professional-rugby-player-diagnosed-with-cte-report/

      Former Auckland Blues halfback Billy Guyton has become New Zealand’s first professional rugby player to be diagnosed with chronic traumatic encephalopathy (CTE), Radio New Zealand reported on Thursday. Guyton, who also played for the Wellington Hurricanes and Canterbury Crusaders in Super Rugby, died suddenly last year at the age of 33. CTE, a degenerative brain […]

      The post First New Zealand professional rugby player diagnosed with CTE – report appeared first on planetcirculate.

      ]]>


      Former Auckland Blues halfback Billy Guyton has become New Zealand’s first professional rugby player to be diagnosed with chronic traumatic encephalopathy (CTE), Radio New Zealand reported on Thursday.

      Guyton, who also played for the Wellington Hurricanes and Canterbury Crusaders in Super Rugby, died suddenly last year at the age of 33.

      CTE, a degenerative brain disease linked to repeated head impacts in contact sport, can only be diagnosed when the brain is examined after death.

      Radio New Zealand (RNZ) said Guyton’s family had received the CTE diagnosis this week after testing by Auckland’s Neurological Foundation Human Brain Bank.

      “It was noted as CTE by the New Zealand-based pathologist,” the Brain Bank’s Co-Director, Professor Maurice Curtis, told RNZ.

      “It was sent to an Australian pathologist for a second opinion.”

      The Brain Bank was unable to provide immediate comment when contacted by Reuters on Thursday.

      The sport’s national governing body, New Zealand Rugby, said it shared the Guyton family’s concern at his diagnosis.

      “NZR is concerned about the possibility that repeated head impacts during participation in rugby may contribute to neurodegenerative diseases in later life,” it said in a statement.

      Guyton retired from rugby at the age of 28 in 2018 after suffering repeated episodes of concussion from head knocks. He told a New Zealand media outlet that everyday activities would trigger concussion symptoms.

      “Watching TV would bring on headaches, doing too many tasks, loud noises, some days I would need noise-cancelling headphones or I would feel nauseous and have blurry or double vision, it was not very fun,” he told the Nelson Weekly at the time of his retirement.

      Guyton’s father told RNZ his son had suffered before his death.

      “The poor guy would spend hours in a small, dark cupboard because he couldn’t handle being in the light,” John Guyton said.

      “Some mornings he’d just sit in the bottom of his shower tray crying, trying to muster up the energy to get moving.”

      Just under 300 former rugby players are suing World Rugby, England’s Rugby Football Union and the Welsh Rugby Union over neurological injures, alleging the bodies failed to protect the health and safety of players.

      The governing bodies say player welfare is the sport’s number one priority and they will be guided by the latest science.

      Rugby authorities have introduced smart mouthguard technology for head impact assessments and started trials to lower tackle height in community rugby as part of efforts to reduce the risk of head injuries in the sport. REUTERS



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      Olivia Munn shares she was diagnosed with breast cancer shortly after ‘normal’ mammogram – WSVN 7News | Miami News, Weather, Sports https://planetcirculate.com/olivia-munn-shares-she-was-diagnosed-with-breast-cancer-shortly-after-normal-mammogram-wsvn-7news-miami-news-weather-sports/ https://planetcirculate.com/olivia-munn-shares-she-was-diagnosed-with-breast-cancer-shortly-after-normal-mammogram-wsvn-7news-miami-news-weather-sports/#respond Wed, 13 Mar 2024 23:06:49 +0000 https://planetcirculate.com/olivia-munn-shares-she-was-diagnosed-with-breast-cancer-shortly-after-normal-mammogram-wsvn-7news-miami-news-weather-sports/

      (CNN) — Olivia Munn has gone public with her breast cancer diagnosis. On Wednesday, the actress shared a gallery of photos and video on her verified Instagram account, showing her in the hospital, with a caption that read, “I was diagnosed with breast cancer. I hope by sharing this it will help others find comfort, […]

      The post Olivia Munn shares she was diagnosed with breast cancer shortly after ‘normal’ mammogram – WSVN 7News | Miami News, Weather, Sports appeared first on planetcirculate.

      ]]>


      (CNN) — Olivia Munn has gone public with her breast cancer diagnosis.

      On Wednesday, the actress shared a gallery of photos and video on her verified Instagram account, showing her in the hospital, with a caption that read, “I was diagnosed with breast cancer. I hope by sharing this it will help others find comfort, inspiration and support on their own journey.”

      Munn also shared a statement on text slides in the post, which began, “In February of 2023, in an effort to be proactive about my health, I took a genetic test that checks for 90 different cancer genes.”

      “I tested negative for all, including BRCA (the most well-known breast cancer gene). My sister Sara had just tested negative as well,” Munn wrote. “We called each other and high-fived over the phone. That same winter I also had a normal mammogram. Two months later I was diagnosed with breast cancer.”

      The “X-Men” star, 43, went on to explain that she has undergone four surgeries in the past 10 months, including a double mastectomy performed 30 days after her biopsy.

      There have also been plenty of days in bed and her learning “more about cancer, cancer treatment and hormones than I ever could have imagined.”

      “Surprisingly I’ve only cried twice,” she wrote. “I guess I haven’t felt like there was time to cry.”

      According to Munn, her Ob-Gyn detected her cancer by opting to calculate her “Breast Cancer Risk Assessment Score” which she said “looked at factors like my age, familial breast cancer history, and the fact I had my first child after the age of 30.”

      “Because of that score I went to get an MRI, which led to an ultrasound, which then led to a biopsy,” Munn wrote. “The biopsy showed I had Luminal B cancer in both breasts. Luminal B is an aggressive, fast moving cancer.”

      According to Breast Cancer Foundation Susan G. Komen, “women with luminal B tumors tend to have fairly high survival rates.”

      Munn counts herself as “lucky” given that “we caught it with enough time that I had options.”

      “I want the same for any woman who might have to face this one day,” she wrote in her statement. “Ask your doctor to calculate your Breast Cancer Risk Assessment Score.”

      Munn also thanked her friends and family for their support, including her partner comedian John Mulaney with whom she shares a toddler son, Malcolm.

      Copyright 2024 Sunbeam Television Corp. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

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      Ohio mom reveals ‘heartbreak’ after son was diagnosed with DEMENTIA at age EIGHT – as she shared the subtle symptom that led to the ‘nightmare diagnosis’ https://planetcirculate.com/ohio-mom-reveals-heartbreak-after-son-was-diagnosed-with-dementia-at-age-eight-as-she-shared-the-subtle-symptom-that-led-to-the-nightmare-diagnosis/ https://planetcirculate.com/ohio-mom-reveals-heartbreak-after-son-was-diagnosed-with-dementia-at-age-eight-as-she-shared-the-subtle-symptom-that-led-to-the-nightmare-diagnosis/#respond Tue, 12 Mar 2024 16:22:42 +0000 https://planetcirculate.com/ohio-mom-reveals-heartbreak-after-son-was-diagnosed-with-dementia-at-age-eight-as-she-shared-the-subtle-symptom-that-led-to-the-nightmare-diagnosis/

      Grayson Naff was diagnosed with diagnosed with rare Batten disease last year ‘This is what heartbreak is. The pain is beyond words,’ his mother said READ MORE: Maryland couple reveal how they found surrogates on FACEBOOK By Caitlin Tilley, Health Reporter For Dailymail.Com Published: 11:28 EDT, 12 March 2024 | Updated: 12:01 EDT, 12 March 2024 […]

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      • Grayson Naff was diagnosed with diagnosed with rare Batten disease last year
      • ‘This is what heartbreak is. The pain is beyond words,’ his mother said
      • READ MORE: Maryland couple reveal how they found surrogates on FACEBOOK

      An Ohio mom has revealed her ‘heartbreak’ after her eight-year-old son was diagnosed with a rare disease that will lead to childhood dementia.

      Grayson Naff was diagnosed with Batten disease last year – a group of rare genetic conditions that cause the brain to gradually shut down over five to ten years.

      His mother, Emily Blackburn, from Tipp City, said: ‘This is what heartbreak is. The pain is beyond words. There are times I have trouble breathing through this nightmare.’

      Batten disease affects about one in 25,000 babies and eventually sufferers lose the ability to speak, move, see and swallow. They usually live for only five years after symptoms begin. 

      Grayson’s eyesight has already deteriorated to the point where he is considered legally blind, meaning his is already struggling with daily activities like playing, reading and writing difficult.

      Grayson, 8, with his mother Emily Blackburn

      Grayson with his mother, her husband, Chris Naff, and his younger brother Beckett. Siblings of the affected children have a one in four chance of also developing the disease, and a 50 percent chance of being a carrier, according to Boston's Children's Hospital

      Grayson with his mother, her husband, Chris Naff, and his younger brother Beckett. Siblings of the affected children have a one in four chance of also developing the disease, and a 50 percent chance of being a carrier, according to Boston’s Children’s Hospital

      ‘If there is no approved treatment/cure in the coming years Grayson will lose every function he has now, the first being full blindness,’ his mother said. 

      Grayson recently started training with a white cane – a mobility tool for the visually impaired. 

      It involves walking with a cane which scrapes along the ground as the person walks, allowing the individual to detect obstacles in their environment.

      At best, he can see about five to 10 inches ahead of him, Mrs Blackburn told Fox News.

      ‘Accepting that my son is legally blind — and that if he goes down the typical path of Batten disease, he will likely lose all of his vision — is heartbreaking,’ she said.

      Grayson’s health problems began in late August 2022 when he began standing close to the TV to see it.

      His mother took him to an ophthalmologist, who noticed an issue in the boy’s retina and referred him to a specialist at the Cincinnati Eye Institute.

      The specialist thought it could be Stargardt Disease, a rare genetic eye disease that causes vision loss in childhood.

      But after genetic testing to confirm the diagnosis, doctors realized he in fact had Batten disease.

      It is passed down through families and is caused by a genetic mutation. There is no cure for the disease.

      Because Batten disease is recessive, children must have two copies of a mutation – one from each parent – to be affected. 

      Siblings of the affected children have a one in four chance of also developing the disease, and a 50 percent chance of being a carrier, according to Boston’s Children’s Hospital.

      Grayson takes Miglustat, a drug which is hoped could ease or slow down symptoms.

      But the drug is not yet FDA-approved for Batten disease, meaning if insurance does not cover it, the medicine costs the family around $100 per pill or $9,000 every month.

      Grayson has also started to learn Braille, which allows blind people to read by feeling a pattern of raised dots.

      At school, he has a scribe who notes down what the boy says. A portable desktop magnifying device which magnifies and changes contrast also helps he read his papers at school.



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      Woman, 33, who felt thirsty and tired all the time is diagnosed with terminal brain cancer https://planetcirculate.com/woman-33-who-felt-thirsty-and-tired-all-the-time-is-diagnosed-with-terminal-brain-cancer/ https://planetcirculate.com/woman-33-who-felt-thirsty-and-tired-all-the-time-is-diagnosed-with-terminal-brain-cancer/#respond Mon, 11 Mar 2024 16:37:59 +0000 https://planetcirculate.com/woman-33-who-felt-thirsty-and-tired-all-the-time-is-diagnosed-with-terminal-brain-cancer/

      A ROYAL Navy officer who felt thirsty and tired all the time was eventually diagnosed with terminal brain cancer. Petty officer Jess Zentilin-Dorey, 33, discovered she had a grade 4 astrocytoma in June 2022 after a seizure at home. 8 Royal Navy officer Jess Zentilin-Dorey, who has terminal cancerCredit: Courtesy Royal Navy 8 The 33-year-old […]

      The post Woman, 33, who felt thirsty and tired all the time is diagnosed with terminal brain cancer appeared first on planetcirculate.

      ]]>


      A ROYAL Navy officer who felt thirsty and tired all the time was eventually diagnosed with terminal brain cancer.

      Petty officer Jess Zentilin-Dorey, 33, discovered she had a grade 4 astrocytoma in June 2022 after a seizure at home.

      8

      Royal Navy officer Jess Zentilin-Dorey, who has terminal cancerCredit: Courtesy Royal Navy
      The 33-year-old with wife Gabriella in hospital after surgery in July 2023

      8

      The 33-year-old with wife Gabriella in hospital after surgery in July 2023Credit: Courtesy Royal Navy
      Jess was diagnosed with a grade 4 astrocytoma in June 2022

      8

      Jess was diagnosed with a grade 4 astrocytoma in June 2022Credit: Brain Tumour Research

      Initially she thought months of intensive training was to blame for her dehydration, which led to feelings of fatigue and exhaustion.

      But she discovered the true cause of her symptoms just nine weeks after marrying her partner Gabriella.

      Jess, who moved from Pembrokeshire to Plymouth to join the Navy aged 16, said: “I was getting up at 4.30am for field gun training sessions, maintaining my own gym routine and working a full day.

      ”The weather at the time was incredibly hot so when I began to feel tired and worn out.

      ”I just thought it was down to dehydration and exhaustion, but little did I know it was something more sinister.

      “Just nine weeks after getting married on June 26, my life changed forever.”

      Jess was diagnosed with a astrocytoma – a rare type of cancer that can occur in the brain or spinal cord.

      About a third of all brain tumours in the UK are astrocytomas, making it the most common form.

      Describing the day of her seizure, Jess said: “All I remember was waking up on the kitchen floor, my wife leaning over me and calling my name, with no recollection of what had happened.

      “She asked me if I knew her name to which I laughed and said, ‘Gabriella’.

      “She said that during this time, I looked vacant and when I spoke her name, my speech was broken.

      “My seizure had lasted for about eight minutes, and fortunately the ambulance arrived soon after.”

      Teenager is ‘cured’ of brutal brain cancer in world first – as stunned doctors ‘watched tumour disappear’

      Paramedics rushed Jess to Derriford Hospital, where she had a CT scan, MRI scan and other tests.

      At 10pm, doctors revealed they had found a lesion on her brain.

      Jess was sent home the following day and had a craniotomy three weeks later.

      “The doctors said they were successful in removing 99 per cent of the mass, and Gabriella and I thought this was good news,” she said.

      “We went to the pathology appointment in high spirits, but I was stopped in my tracks.

      “Because my tumour is grade 4, it is incurable.

      “I didn’t want to know the prognosis, but I understood that it would shorten my life expectancy. 

      “When we left the consultant’s room, Gabriella broke down in tears. I tried to hold it together but failed and cried while holding her tightly.

      “Our whole world had been turned upside down – forever changed.”

      I just thought I was dehydrated and exhausted, but little did I know it was something more sinister

      Jess Zentilin-Dorey

      Jess underwent gruelling radiotherapy and chemotherapy treatment, was prescribed steroids, and is now monitored with scans.

      She has also made lifestyle changes to help her feel better, including cutting out alcohol and following a plant-based diet.

      “I gained a huge amount of weight. Before my diagnosis I was 68kg, and at the start of 2023, I was 78kg – the heaviest I’ve ever been,” she added.

      Jess, who is sharing her story during Brain Tumour Awareness Month, is now running in the Plymouth Half Marathon on April 28 to raise money for the charity Brain Tumour Research and awareness of her condition.

      “Prior to finding out my tumour diagnosis I was naïve about cancer,” she said.

      “I assumed that it would follow a process – the doctors found it, treated it and you were sent on your merry cancer-free way.

      ”However, my curiosity got the better of me and, searching online, I seemed to find a variety of stories and information with numerous timelines.”

      ‘Time is so precious’

      In a bid to take control of her life in the wake of a life-limiting diagnosis, Jess signed up to the 13.1mile challenge alongside Gabriella to regain her physical fitness.

      She added: “I decided to set myself a goal of running a 10km to get back into fitness.

      ”As someone who had always been keen on health and movement, I finally felt able to get back to the gym and found that goal setting helped me keep a positive outlook and gave me a huge drive to stay focused.”

      In 2023, she completed the Plymouth 10km in 60 minutes. She went on to do the Royal Parks Half Marathon in two hours and 12 minutes.

      She is now training for the Plymouth Half Marathon with Gabriella in April, as well as the Peak District 52km Ultra Challenge in July.

      “We want to keep achieving goals together and raising money for charities that have helped us through our cancer journey and help them by raising the funds they need to help others living with cancer,” Jess said.

      Brain tumours kill more children and adults under the age of 40 than any other cancer, yet just one per cent of the national spend on cancer research has been allocated to brain tumours since records began in 2002.

      That is one good thing that comes from getting a terminal diagnosis… you get perspective

      Jess Zentilin-Dorey

      Jess said: “There’s still so much that we don’t know about brain tumours.

      ”If we are to find kinder treatments and a cure for the disease, we must talk about brain tumours so people recognise the historic underfunding in vital research compared to other cancers.

      “I don’t feel like someone who is living with brain cancer, I don’t feel like I’m ill or have an incurable disease.

      ”I know my journey is far from over. My break in treatment right now is wonderful, especially as it has been non-stop for 18 months, but I know that I will require more at some point.

      ”Until then, I want to live my life to the fullest and share my story to raise awareness about brain tumours.

      “That is one good thing that comes from getting a terminal diagnosis… you get perspective.

      “Time is so precious; I literally cannot emphasise that enough.”

      Katrina Jones, head of community fundraising at Brain Tumour Research, said: “Jessica’s story is devastating although not unusual. Brain tumours are indiscriminate; they can affect anyone at any age.

      Read more on the Scottish Sun

      ”We’re grateful to Jessica for taking the time to share her diagnosis with us and wish her well with her ongoing scans and her training for the Plymouth half Marathon.

      ”We are sending our good luck to both Jessica and Gabriella for the race.”

      Jess and Gabriella received the devastating news just weeks after getting married

      8

      Jess and Gabriella received the devastating news just weeks after getting marriedCredit: Courtesy Royal Navy
      The petty officer brushed her symptoms off as dehydration and fatigue from training

      8

      The petty officer brushed her symptoms off as dehydration and fatigue from trainingCredit: Courtesy Royal Navy
      'Prior to finding out my tumour diagnosis I was naïve about cancer,' she said

      8

      ‘Prior to finding out my tumour diagnosis I was naïve about cancer,’ she saidCredit: Royal Navy
      The couple are running the Plymouth Half Marathon together in April

      8

      The couple are running the Plymouth Half Marathon together in AprilCredit: Courtesy Royal Navy
      Jess, who underwent chemotherapy and radiotherapy, post-surgery

      8

      Jess, who underwent chemotherapy and radiotherapy, post-surgeryCredit: Courtesy Royal Navy

      What is an astrocytoma and what are the symptoms?

      An astrocytoma is a brain tumour that grows from astrocyte brain cells.

      It is the most common primary brain tumour, making up a third of all diagnosed in the UK.

      There are four main types:

      1. Grade 1 (pilocytic astrocytoma) – slow growing, relatively contained, unlikely to spread
      2. Grade 2 (diffuse astrocytoma) – slow growing, difficult to remove completely, can sometimes return after treatment
      3. Grade 3 (anaplastic astrocytoma) – fast growing, malignant or cancerous, often return after treatment
      4. Grade 4 (glioblastoma) – fastest growing, very often spread and return after treatment

      The main symptoms of astrocytoma vary between patients, but include:

      • Headaches
      • Difficulty speaking
      • Change in vision, like double vision or blurriness
      • Cognitive difficulties, like trouble thinking or remembering
      • Seizures (epilepsy)

      Treatment usually involves surgery, radiotherapy and chemotherapy.

      Many factors influence someone’s prognosis, but the average survival time for a grade 4 astrocytoma is 12 to 18 months.

      Only 25 per cent of people live for more than one year, and just five per cent survive more than five years.

      Source: Brain Tumour Charity



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      A specialist laughed at my cancer fears – then I was diagnosed https://planetcirculate.com/a-specialist-laughed-at-my-cancer-fears-then-i-was-diagnosed/ https://planetcirculate.com/a-specialist-laughed-at-my-cancer-fears-then-i-was-diagnosed/#respond Sun, 10 Mar 2024 06:49:39 +0000 https://planetcirculate.com/a-specialist-laughed-at-my-cancer-fears-then-i-was-diagnosed/

      When everything stops, all of that support and structure goes away (Picture: Abi Holly) Most people are relieved when they get the phone call to say they are cancer-free.  When the hospital rang to tell me in the spring of 2020, my mum burst into tears, overjoyed. But I quietly slipped away to my bedroom. […]

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      When everything stops, all of that support and structure goes away (Picture: Abi Holly)

      Most people are relieved when they get the phone call to say they are cancer-free. 

      When the hospital rang to tell me in the spring of 2020, my mum burst into tears, overjoyed. But I quietly slipped away to my bedroom.

      I cried because I knew all the support, care and routine I had been given while being treated was about to disappear. 

      I was 14 when I first noticed a lump in my right hand, in the webbing between my ring and middle fingers. 

      My GP referred me to a specialist who laughed – actually laughed – and said: ‘Kids your age don’t get cancer’ and told me it was probably fatty tissue. Then he took my name off the urgent treatment list.

      The man had 40 years of experience, I had every reason to trust him. So, for the next two years, I thought nothing about the weird lump in my hand. I would wiggle it around, which became my  party trick. I used to draw a circle around it to keep track of how big it was growing. 



      Sign up to the Metro.co.uk Lifeline challenge

      This year Metro.co.uk is proudly supporting Young Lives vs Cancer for our 2024 Lifeline campaign.

      To help raise vital funds for the charity we are calling on our readers to join us on on 18 May for an an epic hike along the beautiful Jurassic Coast.

      You can choose to do 25km or 58km and registration starts at just £15 with a fundraising minimum of £240 (25km) / £360 (58km). Alternatively, you can pay for your place and set your own fundraising target.

      Whether you want to do it as a group or are signing up solo, as part of Team Lifeline, you’ll receive tons of support and advice, so that every step you take can make a massive difference to the lives of young cancer patients.

      To sign up and find out more, click here.

      It wasn’t until March 2020 that the hospital got in touch to say they could squeeze me in for surgery to remove it. 

      Despite the pandemic, my surgery was plain sailing, and I went home to wait for my results in six weeks. 

      Instead, I got a call that same week and was told to come back to the hospital immediately.

      Even before we got there, I knew. 

      Left: Abi's hand with a faded scar where the lump used to be. Right: a collage of the photos of the lump (circled) at various dates (2018, 2019 and 2020)

      I used to draw a circle around the lump to keep track of how big it was growing (Picture: Abi Holly)

      My mum, nan, surgeon and I all squashed into a room the size of a cupboard and the surgeon drew out a handprint. He described where my tumour had been, and its size, and confirmed that yes, it was cancer.

      Everything goes silent when you hear that word. The surgeon waffled on about how I’d need surgery to explore and remove the surrounding tissue in case the cancer had spread, but at that point he didn’t know the name of it, its grade or its stage.

      I don’t think I really took it in. 

      Downstairs, in the hospital Subway, my mum was a mess, shaking and spilling her drink, but I was weirdly calm, picking out my sandwich toppings. 

      Even now, there are days when I can’t quite get my head around what has happened to me. From the moment I was diagnosed to the call telling me I was in remission, it was eight weeks.

      I felt like a toy that had been dropped (Picture: Abi Holly)

      I ended up having to drop out of college because I just couldn’t keep up with my illness weighing on my mind, and I couldn’t use my heavily-bandaged right hand for a long time after surgery. 

      Those eight weeks between having surgery and getting the all clear were a blur of contact and information, going back and forth to the hospital for appointments, tests and scans of every kind imaginable. It was oddly reassuring: there was always something to do or focus on, and I was being monitored all the time.

      But when everything stops, all of that support and structure goes away. 

      While having cancer had been hard, I found the period after I was declared cancer-free absolutely horrific.

      I felt like a toy that had been dropped: that’s it, move on, we’ll see you in three months for a check up. 

      When I tried to go back to college in September 2020, everything was online and I ended up dropping out again.

      Abi lying in a hospital bed with a bandage on her hand

      Even now, there are days when I can’t quite get my head around what has happened to me (Picture: Abi Holly)

      I didn’t feel like I could talk to anyone about what was going on. I’m a closed book at the best of times, and my parents had already been through the worry that they might lose their child.

      To make matters worse, at 15, none of my friends knew anyone with cancer – they had asked if I would die, and when, and that was about it in terms of their support.

      It was my social worker who finally nagged me to get help and to talk to someone. She had been assigned to me when I was first diagnosed (it is standard if you get diagnosed with cancer under the age 16).

      I was reluctant; as soon as you speak to a cancer charity it all gets very real, and my experience had been so unusual, I didn’t think I wanted any help.

      Eventually she put me in touch with the charity Young Lives vs Cancer. 

      Don’t laugh at us when we come in at 14, concerned that we could have this disease (Picture: Abi Holly)

      It provides support for anyone aged 0-25 who has been diagnosed with cancer. This could be anything from financial grants to help a young person afford trips to hospital, or advocacy on their behalf. 

      I loved their focus on accessible, tailored help – because everyone experiences this disease differently.

      The team emailed right away to offer me online advice, resources and calls, and put me in contact with others my age who had been through something similar. 

      People try to sympathise when you tell them you have cancer, but talking to someone who actually knows changes everything. Even if you have nothing in common apart from that one thing, you’ve all been told: I’m really sorry, you have cancer, and that creates a life-long bond. 

      I am now 21 and volunteer for the charity. A group of us meet up every two months and discuss how hospitals and health workers can change and improve to support young people. 

      Personally, I wish every hospital had a paediatric cancer unit (I was often the youngest in my hospital’s waiting room by about 70 years) and I’d like to see all young cancer patients treated respectfully, as too often, health workers talk to parents instead of the patient. Young people understand what is happening, so please talk to us. 

      And obviously, don’t laugh at us when we come in at 14, concerned that we could have this disease. 

      Crucially, there needs to be more awareness and support for young people long after they have received a cancer diagnosis.

      My life for those eight weeks was defined by cancer, and still is, really. When you go into remission, there’s an expectation that you should go back to school or college, back into normal life, and just carry on as though nothing has happened. 

      You can’t, and navigating the world after having a serious illness is scary and complex. I need to be able to say that to people who instantly know what I mean.

      Do you have a story you’d like to share? Get in touch by emailing Ross.Mccafferty@metro.co.uk. 

      Share your views in the comments below.


      MORE : My boyfriend took the condom off during sex – and that means I was raped


      MORE : ‘I’m a mum with an eating disorder, it doesn’t make me a bad parent’


      MORE : Martin Lewis reveals simple swap that can save parents £7,000

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      Actress Amy Schumer diagnosed with Cushing syndrome https://planetcirculate.com/actress-amy-schumer-diagnosed-with-cushing-syndrome/ https://planetcirculate.com/actress-amy-schumer-diagnosed-with-cushing-syndrome/#respond Sun, 25 Feb 2024 11:18:15 +0000 https://planetcirculate.com/actress-amy-schumer-diagnosed-with-cushing-syndrome/

      American actress-comedienne Amy Schumer always made it a point to call out Internet trolls who made fun of her puffy face on her socials. However, the onslaught of online criticism regarding her appearance – after she recently appeared on American talk shows such as The Tonight Show to promote the second season of her comedy-drama […]

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      American actress-comedienne Amy Schumer always made it a point to call out Internet trolls who made fun of her puffy face on her socials.

      However, the onslaught of online criticism regarding her appearance – after she recently appeared on American talk shows such as The Tonight Show to promote the second season of her comedy-drama series Life & Beth (2022 to present) – prompted the 42-year-old to undergo a health check, where she was diagnosed with Cushing syndrome.

      According to American medical centre Mayo Clinic, Cushing syndrome is a condition caused by having too much of the hormone cortisol in the body for a long time.

      Symptoms include a rounded face, a fatty lump between the shoulders, and pink or purple stretch marks on the skin. It can also lead to high blood pressure, bone loss and type 2 diabetes.

      On Feb 23, Schumer revealed her diagnosis to Jessica Yellin in the American journalist’s News Not Noise newsletter. Ms Yellin said she reached out to Schumer after the performer received “cruel and misogynist comments” about her looks following her interview on The Tonight Show.

      “While I was doing press on camera, I was also in magnetic resonance imaging machines four hours at a time, having my veins shut down from the amount of blood drawn, and thinking I may not be around to see my son grow up,” said the star of comedy films such as Trainwreck (2015) and I Feel Pretty (2018), who has a son, Gene, four, with husband Chris Fischer, an American chef.

      She added in her interview with Ms Yellin: “So, finding out I have the kind of Cushing that will just work itself out and that I’m healthy was the greatest news imaginable.”

      Schumer’s reveal came more than a week after she posted on Instagram on Feb 16 that her appearance “is puffier than normal right now” as she was going through “some medical and hormonal things” because of endometriosis, an autoimmune disease in which tissue grows outside the uterus, which can cause pain and infertility. 

      The comedienne told Yellin that “having the Internet chime in” on her appearance helped her realise something was wrong.

      She added she was open to sharing her medical condition because she “wants to advocate for women’s health”.

      “The shaming and criticism of our ever-changing bodies is something I have dealt with and witnessed for a long time,” said Schumer. “I want so much for women to love themselves and be relentless when fighting for their own health in a system that usually doesn’t believe them.”

      She added that her diagnosis “is a good example of the fact that we never know what is going on with someone”.

      “Everyone is struggling with something,” she said. “Maybe we can all be a little kinder to each other and ourselves.”



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      Wendy Williams diagnosed with rare form of dementia, speech disorder – National https://planetcirculate.com/wendy-williams-diagnosed-with-rare-form-of-dementia-speech-disorder-national/ https://planetcirculate.com/wendy-williams-diagnosed-with-rare-form-of-dementia-speech-disorder-national/#respond Fri, 23 Feb 2024 01:52:08 +0000 https://planetcirculate.com/wendy-williams-diagnosed-with-rare-form-of-dementia-speech-disorder-national/

      Wendy Williams has revealed that she is facing a rare form of dementia and a disorder that affects communication. Williams, 60, was diagnosed with primary progressive aphasia and frontotemporal dementia (FTD) in 2023 after undergoing “a battery of medical tests,” according to a press release made on behalf of the former talk show host, aiming […]

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      Wendy Williams has revealed that she is facing a rare form of dementia and a disorder that affects communication.

      Williams, 60, was diagnosed with primary progressive aphasia and frontotemporal dementia (FTD) in 2023 after undergoing “a battery of medical tests,” according to a press release made on behalf of the former talk show host, aiming to correct “inaccurate and hurtful rumors about her health.”

      “Over the past few years, questions have been raised at times about Wendy’s ability to process information and many have speculated about Wendy’s condition, particularly when she began to lose words, act erratically at times, and have difficulty understanding financial transactions,” the statement reads.

      FTD is an umbrella term for a group of disorders that most often affect the parts of the brain associated with personality and behaviour, according to the Alzheimer Society of Canada. It can also cause difficulties with speech and movement, as well as memory loss.

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      Aphasia is referred to as a “language problem” by the Canadian Aphasia Institute, which states it “most dramatically affects conversational interaction (talking and understanding), as well as the ability to read and write.”

      Bruce Willis is another high-profile celebrity who has been diagnosed with FTD and aphasia. Willis announced he was quitting acting in 2022, and a year later, his family made a statement that the actor’s condition had worsened and he was also experiencing FTD.


      Click to play video: 'Bruce Willis diagnosed with dementia 1 year after battling with aphasia'


      Bruce Willis diagnosed with dementia 1 year after battling with aphasia


      The update on Williams’ health comes two years after she cancelled her hit talk show The Wendy Williams Show, which ran for 14 years. At the time, Williams was open that she had been diagnosed with Graves’ disease, an autoimmune disorder that affects the thyroid and can cause bulging eyes, excessive sweating and muscle weakness, according to the Thyroid Foundation of Canada.

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      The statement on Williams’ behalf acknowledged that her health issues “have already presented significant hurdles in Wendy’s life.”


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      “The decision to share this news was difficult and made after careful consideration, not only to advocate for understanding and compassion for Wendy, but to raise awareness about aphasia and frontotemporal dementia and support the thousands of others facing similar circumstances,” it reads.

      “Unfortunately, many individuals diagnosed with aphasia and frontotemporal dementia face stigma and misunderstanding, particularly when they begin to exhibit behavioral changes but have not yet received a diagnosis.”

      Approximately five to 10 per cent of all dementia cases are FTD, according to the Alzheimer Society of Canada, but it makes up about 20 per cent of all young-onset dementia diagnosed in those under 65. There is also no known cure and no effective way to slow the progression of FTD.

      Cathy Barrick, chief executive officer at the Alzheimer Society of Ontario, told Global News last year that FTD “primarily attacks the frontal temporal lobe … that governs your behaviour and judgment.”

      “So sometimes the symptoms associated with it can be quite disturbing both to the person who is living with it and the people around them.”


      Click to play video: 'Health Matters: What is frontotemporal dementia?'


      Health Matters: What is frontotemporal dementia?


      Barrick said it’s important for people to be aware of FTD and be more understanding of those who have it.

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      “People who are in the early stages actually can be still very productive members of society… We don’t want them to have to withdraw as they start to show symptoms and have some struggles,” Barrick said.

      “Maybe if employers and family members just understood people’s limitations and that maybe they may have days that are better than others, people can still really actively participate and contribute. And so overcoming that stigma is really, really important.”

      Williams is “still able to do many things for herself,” according to the update. “Most importantly she maintains her trademark sense of humor and is receiving the care she requires to make sure she is protected and that her needs are addressed.”

      A new Lifetime documentary titled Where is Wendy Williams? is due to air on Saturday.

      According to People, crews started filming in August 2022 and were set to document Williams’ comeback and she prepared to launch a new podcast.

      But things took a turn as Williams’ serious health issues became more clear.

      “We’ve all seen the images over the last few months — and, really, few years — of what has seemed like a spiral for my aunt,” Williams’ niece Alex Finnie told People. “It was shocking and heartbreaking to see her in this state.”

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      The documentary crews stopped filming in April 2023 as the former host was admitted to a facility to treat “cognitive issues.”

      &copy 2024 Global News, a division of Corus Entertainment Inc.





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